Anyone else have a sleeping disorder???

  1. I know this is kind of personal, but does anyone have a sleeping disorder and how has it affected your life? How do you cope? It was thought that I had fibromyalgia for several years, until my doctor noticed that nothing was working and I was getting worse. It took about 7 months to get a diagnosis, and I still don't understand it-I didn't know there were at least 78 different types of sleep disorders.

    I've been looking for a support group, or someone to talk to because I have always been a high-energy person, and the last 2 years have been really bad, but actually knowing the correct thing now, and having medication that helps me sleep and stay awake has been a tremendous blessing, but I kind of feel alone because I haven't found anyone else to talk about it with. Any thoughts?:confused1:
  2. Well, I personally don't. But my fiancee has very bad insomnia. He will stay up for 2-3 days at a time sometimes.

    If you are looking for support, or just people in similar situations as you, you might look for a message board or forum geared toward sleep disorders.
  3. I don't have anything diagnosed, so I don't know if you'd call it a disorder, but I often have problems with insomnia.
  4. me too, I dont stay up for days but sometimes i go to bed around midnight and lay there until 4 or 5 am. I dont know why this happens and I dont take anything for it but it gets pretty bad sometimes..
  5. dlovely51, I am very sorry to hear that you have a sleeping problem. It is impossible to function during the day without proper sleep. It's a positive step that you have found a doctor who could diagnosis you and I hope you get some relief soon.

    I don't know if I have a sleep disorder officially, but something is terribly wrong with me. My doctor gave an prescription for Lunesta, but I think the problem is complicated and is caused by something not obvious. I'm healthy as can be and very active, but at night even though I'm exhausted I can't sleep. I'm not thinking or worrying, I'm just covered with a blank feeling of heaviness, but I'm wide-awake. If I don't take the Lunesta I will stay awake for 2 - 3 days with maybe an hour nap. I'm also terrified of becoming addicted to it.

    I was planning on asking more about my problem at my next appt. in September. Having read your post, I am more educated. I had no idea there so many reasons one can not sleep.

    How were you diagnosed, may I ask. What type of medicine are you taking to help? I wish you all the best.
  6. Thanks for everyone's responses. I've tried finding an online support group, but most are not active, outdated, or meet in person out of state.

    LeeLee, to answer your question, my primary doctor referred me to a sleep clinic to find out what was wrong. I had to have two sleep studies done because I didn't sleep enough the first time. They hook you up to all these wires that record your brain waves, breathing, heart rate-everything.

    After the second time I took the test, they had me stay the whole day for a "multiple latency test." This is where they test you to see how quickly you can fall into REM sleep. They will let you sleep 15 minutes, then make you stat up two hours pretty much for 8 hours. The sleep specialist I saw was a neurologist, and he described my sleep results. I have to take stimulants during the day, and something to help me stay asleep at night, but its not a sleeping pill. I was really blessed to get the diagnosis, and that the clinic was top-notch-but again, getting use to the pill regimen is a little tough.

    Ihope that helps. I would just ask my doctor for a referral to a sleep clinic if I were you. Good luck.
  8. My sleep disorder-like most sleep disorders is neurological in nature and my doctor told me I was just born with it, but the older I got, the more pronounced it became. So, most likely it won't go away. Now that I know what I have, the major change is knowing I'm not ever going back to my "normal schedule" of having just tons of things to do. I'm a little bored, butt I'm learning slowly to stick to a regular schedule, and pace myself.

    But if Iwere you, I'd really go get a check-up and ask for a referral.
  9. Thank you for all of extremely insightful information. May I ask a couple more questions, if you don't mind? How long did you suffer from your sleep disorder? Is it possible to have it off and on for a few years until it gets worse and worse and eventually one can't sleep? That's what my situation is so I am curious.

    I will definitely take your advice and ask my doctor more about this. Thanks again!:flowers:
  10. Hi LeeLee,
    I've actually had it for years, but it was attributed to other health problems I had, or medication side effects, or lifestyle issues (not having a regular bedtime, etc.). It wasn't until I went through the sleep study, that I realized I suffered even as a teenager.

    I've learned that for most people, it actually does take years to get diagnosed, and for my situation, I just think with other health things going on,, a long commute and a strict work schedule kind of forced the sleep thing to the forefront(I fell a sleep in traffic a few times).

    I'm glad you are going to your regular doctr. Hopefully they will not blow you off and send you right away. Please keep us updated about what happens:smile:
  11. i go to sleep at 12 or 1 am and would just lay in bed wide awake i'd be able to sleep around 5 am. This doesnt happen everyday but i tend to have nights like this if its consistent for more than 3 days i will take a sleeping tab
  12. i can never sleep the night before exams, long flight journeys etc. Since I know this clearly lowers my results on exams and therefore my grades I would like to take sleeping pills but am afraid I might get addicted to them, I'm only 20... It's not that serious since I sleep the night after but enough to get me worried...
  13. My ex BF struggled with sleep disorders and it was a HUGE strain on our relationship I'm sorry to say. After he came home from work, whether we were going to be at his place or mine, we would have dinner and then he would hit the couch and fall asleep, TV blasting, starting around 8:30 - 9:00pm and I would have to wake him up around 11:30 or midnight to get him to come to bed. We each worked days but we had different days off so that evening time was our PRIME time together and sadly he was asleep during a lot of it. He would then get up in the middle of the night and watch TV again or go online for a couple hours and come back to bed around 5am to get a few more zzzzz's before time to go to work again. Cycle repeats.

    Sometimes I was successful getting him to bed, sometimes not and he would just sleep on the couch. He hated coming upstairs to my room to sleep, as it was as if I had asked him to climb Mt. Everest. I tried to be empathetic but it was exhausting. He would get mad if I woke him up doing laundry or cleaning up the kitchen while he was doing his evening napping.

    I tried reaching out subtly to his sister one day to discuss it privately as we were chatting in her kitchen and her response was a rather lighthearted "don't take it personally." I was shocked.

    I wish he had gotten help. I really really tried. It just breaks my heart still. Sorry about the ramble, everyone. I know I'm a wreck and biatch on wheels when I can't get a good night's sleep.
  14. Not to make light of your story, but there was actually a case like this on Divorce court where her husband was snoring/falling asleep all the time and wouldn't get help.

    I think it's harder for men than women to get help, and they can be in denial and not realize how much their sleep disorder impacts not just them, but everyone around them.:sad:
  15. ^^ Having experienced it firsthand, I can truly see this as part of why a marriage could fall apart. When it first started I tried to be empathetic...I didn't know him well and figured he was just extra tired...hey we all have those times we just need to crash.